Our work on disparities in the NICU has revealed considerable gaps in family-centered care. To address these gaps, CPQCC is partnering with NICU families to pilot test measures of family-centered care in the NICU. Improving family-centered care through measurement and feedback will ensure that NICU families, including the most marginalized, are better supported in caring for their infant.
CPQCC has engaged a national panel of experts and family representatives in a Delphi experiment to identify the following key measures of family-centered care. These measures were designed to be extracted primarily from the electronic health record to reduce the measurement burden. Measures being pilot tested include:
- Days from NICU admission to first skin-to-skin care
- Days from NICU admission to first social worker contact
- Hours from birth to priming with oral colostrum