| Title | Disparities in NICU quality of care: a qualitative study of family and clinician accounts. |
| Publication Type | Journal Article |
| Year of Publication | 2018 |
| Authors | Sigurdson K, Morton C, Mitchell B, Profit J |
| Journal | J Perinatol |
| Volume | 38 |
| Issue | 5 |
| Pagination | 600-607 |
| Date Published | 2018 05 |
| ISSN | 1476-5543 |
| Keywords | Ethnic Groups, Female, Gender Identity, Health Equity, Healthcare Disparities, Humans, Intensive Care Units, Neonatal, Intensive Care, Neonatal, Language, Male, Minority Groups, Qualitative Research, Quality of Health Care, Surveys and Questionnaires, Vermont |
| Abstract | OBJECTIVE: To identify how family advocates and clinicians describe disparities in NICU quality of care in narrative accounts. STUDY DESIGN: Qualitative analysis of a survey requesting disparity stories at the 2016 VON Quality Congress. Accounts (324) were from a sample of RNs (n = 114, 35%), MDs (n = 109, 34%), NNPs (n = 55, 17%), RN other (n = 4, 1%), clinical other (n = 25, 7%), family advocates (n = 16, 5%), and unspecified (n = 1, <1%). RESULTS: Accounts (324) addressed non-exclusive disparities: 151 (47%) language; 97 (30%) culture or ethnicity; 72 (22%) race; 41 (13%) SES; 28 (8%) drug use; 18 (5%) immigration status or nationality; 16 (4%) sexual orientation or family status; 14 (4%) gender; 10 (3%) disability. We identified three types of disparate care: neglectful care 85 (26%), judgmental care 85 (26%), or systemic barriers to care 139 (44%). CONCLUSIONS: Nearly all accounts described differential care toward families, suggesting the lack of equitable family-centered care. |
| DOI | 10.1038/s41372-018-0057-3 |
| Alternate Journal | J Perinatol |
| PubMed ID | 29622778 |
| PubMed Central ID | PMC5998372 |
| Grant List | R01 HD083368 / HD / NICHD NIH HHS / United States |
